Articles from National Down Syndrome Society

New clinical education hub empowers primary care professionals with the knowledge and resources required to meet the unique healthcare needs of adults with Down syndrome

Washington DC, Sept. 30, 2025 (GLOBE NEWSWIRE) -- The National Down Syndrome Society (NDSS) announced that LuMind IDSC Foundation, the nation’s leading Down syndrome and Alzheimer’s disease research organization, is merging into NDSS. For nearly five decades, NDSS has served as the national voice for individuals with Down syndrome and their families, driving advocacy and providing resources across the lifespan. While research was among NDSS’ original priorities, the organization grew, and its focus shifted toward expanding programs and directly supporting families. This merger brings that research focus back under one roof, combining NDSS’ community leadership, reach, and policy influence with LuMind’s research expertise and officially launches a new Research pillar of NDSS. 

John McGuire is a Partner and the Global Head of the Conflicts Resolution Group at Goldman Sachs. He is also a dedicated advocate for the Down syndrome community, as his daughter, Anne, has Down syndrome.

New York, NY, Nov. 01, 2024 (GLOBE NEWSWIRE) -- Since 2020, the National Down Syndrome Society (NDSS) and Voya Cares® have collaborated to provide financial support to entrepreneurs with Down syndrome, allowing them to create or expand their businesses. The NDSS and Voya Cares Entrepreneur Grant celebrates both Down Syndrome Awareness Month and National Disability Employment Awareness Month and elevates the national conversation about the need for greater employment opportunities for people with Down syndrome and other disabilities. Throughout the four-year relationship, NDSS and Voya Cares have provided more than $100,000 to eight entrepreneurs.

Flagship NDSS NYC Buddy Walk® to celebrate 30 years and bring together more than 2,500 people together to raise awareness for Down syndrome

Washington D.C., June 10, 2024 (GLOBE NEWSWIRE) -- The National Down Syndrome Society (NDSS) has joined forces, with Orson, the groundbreaking AI video storytelling platform, and Joy of Mom, a leading, trusted resource for moms, to raise critical funds for the Down syndrome community. This Father’s Day, we are offering a meaningful gift for dads and father figures: a video memento that captures the heartfelt things kids rarely say but dad's love to hear.

Orlando, FL, April 29, 2024 (GLOBE NEWSWIRE) -- The National Down Syndrome Society (NDSS) is hosting the inaugural Tremonti Family Charity Golf Outing at the ChampionsGate Golf Club in Orlando, Florida, May 2-3, 2024. In partnership with GRAMMY® award-winning musician Mark Tremonti and his family, the event will kick off Thursday, May 2, with an intimate reception and acoustic performance by GRAMMY award-winning band Creed, with rock band Tonic opening the event.

New York, NY, Nov. 02, 2023 (GLOBE NEWSWIRE) -- Daniel Chaplin, 33, of Homewood, AL will be running in the TCS New York City Marathon for the National Down Syndrome Society (NDSS) on November 5th. This will be Daniel’s second marathon and his first World Marathon Major. He will also be representing the United States in the Parade of the Nations at the opening ceremony of the TCS New York City Marathon on Friday, November 3 alongside his guide, NDSS Senior Advisor Michelle Ray of Wilmington, DE. 

Washington D.C., Oct. 24, 2023 (GLOBE NEWSWIRE) -- At its Annual Meeting on September 24, the National Down Syndrome Society (NDSS) elected seven new members to its Board of Directors.  The Board also named a new executive Committee including Carlo Frappolli as Chairman, Tom Warner as Vice-Chairman, John Short as Treasurer, Janet Eissenstat as Secretary, Candace Whiting as Deputy Secretary and the first Executive Committee member with Down syndrome, Misty Holmes as Audit Chair, and Betsy Goodwin, founder of the organization. Chairman Frappolli previously served as Vice-Chair and Treasurer and supported the organization on a variety of committees. He worked as an executive with JP Morgan Chase for more than 22 years and has a brother, Joe, who is 60 years old and has Down syndrome.  

Washington DC, Oct. 19, 2023 (GLOBE NEWSWIRE) -- Media Contact:

Washington DC, April 13, 2023 (GLOBE NEWSWIRE) -- The National Down Syndrome Society (NDSS) will host their annual Down Syndrome Advocacy Conference April 17 – 19, 2023 in Washington, D.C. This event will bring over 350 advocates, including over 100 advocates with Down syndrome, from 42 states and the District of Columbia to advocate for legislative priorities that impact the Down syndrome community. Due to the COVID-19 pandemic, the event is being held for the first time since 2019. 

Washington D.C., Oct. 26, 2022 (GLOBE NEWSWIRE) -- The National Down Syndrome Society (NDSS), the leading human rights organization for all individuals with Down syndrome, is pleased to announce new additions to its Board of Directors. On October 2, Michael G. Kulma, Ph.D., Lauren Wang, M.D., F.A.A.D.M., and Candace Whiting were elected to the NDSS Board at the 2022 Annual Meeting.